Man suffering from nonstop seizures gets new start - New York News

Man suffering from nonstop seizures gets new start from operation

Posted: Updated:
  • Special ReportsMore>>

  • Did someone die in your house? Valley woman discovers tragic history in her new condo

    Did someone die in your house? Valley woman discovers tragic history in her new condo

    Here's a question that usually doesn't come up as you buy your American dream home. Has anyone ever died in the house, if so how did they die?Those creepy questions are ones that a young valley woman wishes she would have asked.
    Here's a question that usually doesn't come up as you buy your American dream home. Has anyone ever died in the house, if so how did they die?Those creepy questions are ones that a young valley woman wishes she would have asked.
  • Panhandling: why there is an increase in panhandlers

    Panhandling: why there is an increase in panhandlers

    Have you noticed there seems to be more panhandlers on city streets? It's a common site just off freeway exit ramps, waiting to collect money from kindhearted drivers.For some of the men and women who seemingly have fallen on hard times, they're able to rake in big bucks in an hour or two.
    Have you noticed there seems to be more panhandlers on city streets? It's a common site just off freeway exit ramps, waiting to collect money from kindhearted drivers.For some of the men and women who seemingly have fallen on hard times, they're able to rake in big bucks in an hour or two.
  • Some Arivaca residents upset over Border Patrol checkpoint

    Some Arivaca residents upset over Border Patrol checkpoint

    A battle is brewing in one Arizona Border Town over what some residents say is taking over their way of life. They're not talking about migrants crossing the border; their fight is with Border Patrol.
    A battle is brewing in one Arizona Border Town over what some residents say is taking over their way of life. They're not talking about migrants crossing the border; their fight is with Border Patrol.
PHOENIX -

He was only 5 years old when his mom noticed his first seizure. Since then he's has tens of thousands of them.

Turns out Chris Murto had a mass in his brain. You can see it right here on the MRI. Not cancerous, but it caused 25 years of non-stop seizures.

He decided to undergo a rather new brain surgery -- a surgery that uses no scalpels, only lasers. Could it possibly work?

It's no way to grow up. Seizures every day -- sometime up to 20 of them. Chris Murto's been dealing with this entire life.

"When he was five he had his first seizure," says mom Maura Murto.

His mom started keeping a record of Chris's seizures. 24 years later, now a grown man, things had gotten so bad Chris was having about 300 seizures a week.

They weren't grand mal seizures that knock him to the ground, but smaller seizures that exhaust the brain. Chris even had one during our interview.

"I'm having one right now, little seizure… you may notice it in my eyes a little," says Chris Murto.

His mom remembers the first time she noticed the seizures. It was 24 years ago, but the memory is vivid.

"He was talking to me in my lap and he stopped talking and when I looked at his face, there was a little tear dripping down his face and you could feel his heart racing," says Maura Murto.

Her adorable little boy diagnosed with hypothalamic hamartoma.

"For years people didn't know what they were and ignored them."

"It's not exactly a real tumor, the abnormal tissue will be there. Those cells we know partly through research tick along and trigger off the seizures," says Dr. Peter Nakaji, Barrow Neurological Institute.

Chris got on medication but eventually it stopped working and it got worse.

"My IQ dropped while on the medication. Was 120 to around 70."

"His inability to focus, remember things, do what other kids could do. He was behind in class, behind in development."

"We put him in the hospital because he would not stop seizing. He had a seizure every three minutes. And they became painful, he would grab his chest and roll on the floor and say it hurts, it hurts," says Maura. "And he even asked why doesn't God just let me die? At thirteen."

Chris was desperate and his mom heartbroken.

"Wishing I could fix it for him. Just wishing he had a normal life and now we're hoping he's going to get one."

Finally, now that he's 29, Chris has a shot at a normal life.

"There's a very very high chance I'd say 80 to 90 percent that you'll just stop having seizures," says Dr. Nakaji.

We met up with him at Barrow Neurological Institute for a life changing operation.

"My hopes are that things can be much better than they are right now. That maybe in a slight chance, if we're blessed, we might actually have me seizure free."

This brain surgery will require only one stitch performed by Dr. Peter Nakaji and his team.

"They drill a hole the size of a coffee stirrer into the skull and they put the laser inside right into the tumor then they use a computer and cook it," says Maura.

Basically that's it. A laser inserted deep into Chris's brain. The surgery requires hours of set up to make sure the laser aim is perfect, and only seconds to destroy the hamartoma.

No scalpels involved in this operation, but still it is not an easy surgery. One wrong move -- a millimeter off in any direction will be catastrophic.

"So when I say it has to be precise, it has to be precise. We can't injure this, we can't injure any of this."

With hours of prep work to make sure the aim for the laser is perfect… time to press cook.

11 days later we check back in with Chris and his family. Did this surgery work?

"It was amazing it went as text book perfect, as it could. He had 5 seizures before the surgery that morning. Has had none since so I was just oh so happy.

The charts Maura and Chris have kept for 24 years documenting his seizures are now marked with zeros. For the first time, not a single seizure.

"We're just so thankful."

One month later, still no seizures. Chris is getting off his meds. He hopes other people living with the HH tumors will see his story and see that there is hope.

Online:

www.hopeforhh.org 

www.thebarrow.org 

Didn't find what
you were looking for?

  • Local NewsLocal NewsMore>>

  • Dispute over reclining seat diverts flight, again

    Dispute over reclining seat diverts flight, again

    Tuesday, September 2 2014 8:21 AM EDT2014-09-02 12:21:27 GMT
    Delta photoDelta photo
    A Delta Air Lines flight from La Guardia Airport to West Palm Beach, Florida, was diverted to Jacksonville because of a dispute between passengers over a reclining seat. Delta reportedly says the flight was diverted Monday night when a woman got into an argument with a passenger behind her when the woman was trying to recline her seat while the other passenger was trying to sleep on the tray table.
    A Delta Air Lines flight from La Guardia Airport to West Palm Beach, Florida, was diverted to Jacksonville because of a dispute between passengers over a reclining seat. Delta reportedly says the flight was diverted Monday night when a woman got into an argument with a passenger behind her when the woman was trying to recline her seat while the other passenger was trying to sleep on the tray table.
  • High school football player dies

    High school football player dies

    Tuesday, September 2 2014 7:12 AM EDT2014-09-02 11:12:05 GMT
    A 16-year-old high school football player from Staten Island is dead after collapsing during practice Monday, officials said. The teen's father says Miles Kirkland-Thomas collapsed Monday morning during practice for Curtis High School. He was pronounced dead at a hospital.
    A 16-year-old high school football player from Staten Island is dead after collapsing during practice Monday, officials said. The teen's father says Miles Kirkland-Thomas collapsed Monday morning during practice for Curtis High School. He was pronounced dead at a hospital.

  • Bill Clinton to appear in New Haven for fundraiser

    Bill Clinton to appear in New Haven for fundraiser

    Tuesday, September 2 2014 6:24 AM EDT2014-09-02 10:24:23 GMT
    Former President Bill Clinton is scheduled to headline a rally in New Haven to raise money for Democrats running in elections across the country. Clinton is set to appear at the event at the Omni New Haven Hotel on Tuesday. He'll be joined by Gov. Dannel P. Malloy and Lt. Gov. Nancy Wyman, who are seeking re-election in November.
    Former President Bill Clinton is scheduled to headline a rally in New Haven to raise money for Democrats running in elections across the country. Clinton is set to appear at the event at the Omni New Haven Hotel on Tuesday. He'll be joined by Gov. Dannel P. Malloy and Lt. Gov. Nancy Wyman, who are seeking re-election in November.

Powered by WorldNow
Didn't find what you were looking for?
All content © Copyright 2000 - 2014 Fox Television Stations, Inc. and Worldnow. All Rights Reserved.
Privacy Policy | New Terms of Service What's new | Ad Choices