Fundraiser golf outing for Trinity Lynn - New York News

Fundraiser golf outing for Trinity Lynn

Posted: Updated:

Trinity Lynn has a rare disease called S.O.D. (septo optic dysplasia).

A golf outing to help raise money for her treatment will take place on Friday, August 30th at the Brentwood Golf Course in White Lake.

The course is located at 2450 Havenwood Drive in White Lake. 

WEB: http://www.brentwoodgc.com/index.html

The cost is $375 per foresome, or $100 per person.

There's a lunch after golf with a silent auction.

Contact Mike Johnson 248-330-3855 or taral223@yahoo.com

FROM THE NATIONAL INSTITUTE OF HEALTH: http://ghr.nlm.nih.gov/condition/septo-optic-dysplasia

Septo-optic dysplasia is a disorder of early brain development. Although its signs and symptoms vary, this condition is traditionally defined by three characteristic features: underdevelopment (hypoplasia) of the optic nerve, abnormal formation of structures along the midline of the brain, and pituitary hypoplasia.

The first major feature, optic nerve hypoplasia, is the underdevelopment of the optic nerves, which carry visual information from the eyes to the brain. In affected individuals, the optic nerves are abnormally small and make fewer connections than usual between the eyes and the brain. As a result, people with optic nerve hypoplasia have impaired vision in one or both eyes. Optic nerve hypoplasia can also be associated with unusual side-to-side eye movements (nystagmus) and other eye abnormalities.

The second characteristic feature of septo-optic dysplasia is the abnormal development of structures separating the right and left halves of the brain. These structures include the corpus callosum, which is a band of tissue that connects the two halves of the brain, and the septum pellucidum, which separates the fluid-filled spaces called ventricles in the brain. In the early stages of brain development, these structures may form abnormally or fail to develop at all. Depending on which structures are affected, abnormal brain development can lead to intellectual disability and other neurological problems.

The third major feature of this disorder is pituitary hypoplasia. The pituitary is a gland at the base of the brain that produces several hormones. These hormones help control growth, reproduction, and other critical body functions. Underdevelopment of the pituitary can lead to a shortage (deficiency) of many essential hormones. Most commonly, pituitary hypoplasia causes growth hormone deficiency, which results in slow growth and unusually short stature. Severe cases cause panhypopituitarism, a condition in which the pituitary produces no hormones. Panhypopituitarism is associated with slow growth, low blood sugar (hypoglycemia), genital abnormalities, and problems with sexual development.

The signs and symptoms of septo-optic dysplasia can vary significantly. Some researchers suggest that septo-optic dysplasia should actually be considered a group of related conditions rather than a single disorder. About one-third of people diagnosed with septo-optic dysplasia have all three major features; most affected individuals have two of the major features. In rare cases, septo-optic dysplasia is associated with additional signs and symptoms, including recurrent seizures (epilepsy), delayed development, and abnormal movements.

  • Local NewsLocal NewsMore>>

  • Manhattan fire

    Manhattan fire

    Friday, August 1 2014 11:35 AM EDT2014-08-01 15:35:42 GMT
    A large fire was burning in Manhattan on Friday morning.The FDNY was called to 251 E. 35th St. around 11 a.m. It quickly went to two alarms.The building houses a Chinese Restaurant on the first floor and residential units on the upper floors.Thick black smoke was seen over the scene.This is a developing story and will be updated.
    A large fire was burning in Manhattan on Friday morning.The FDNY was called to 251 E. 35th St. around 11 a.m. It quickly went to two alarms.The building houses a Chinese Restaurant on the first floor and residential units on the upper floors.Thick black smoke was seen over the scene.This is a developing story and will be updated.
  • Expert: 'Mini tornado' caused skydiver death

    Expert: 'Mini tornado' caused skydiver death

    Friday, August 1 2014 10:23 AM EDT2014-08-01 14:23:52 GMT
    A safety expert for a national skydiving association says a "mini tornado" caused the accident that killed a correction officer and injured his instructor during a tandem jump.
    A safety expert for a national skydiving association says a "mini tornado" caused the accident that killed a correction officer and injured his instructor during a tandem jump.
  • 8 things to do in August

    8 things to do in August

    Friday, August 1 2014 10:16 AM EDT2014-08-01 14:16:28 GMT

    July came and went in the blink of an eye, or squint since the sun was so bright. As you dwell on the memories of 4th of July, weekends at the beach, nights at the ballpark and a good amount of warm weather, August is going to be another month to make more memories. Restaurant Week is still going on as well as SummerStage, but there is so much more happening in August. Here's a list of 8 things you can do in  New York throughout the month of August.

    July came and went in the blink of an eye, or squint since the sun was so bright. As you dwell on the memories of 4th of July, weekends at the beach, nights at the ballpark and a good amount of warm weather, August is going to be another month to make more memories. Restaurant Week is still going on as well as SummerStage, but there is so much more happening in August. Here's a list of 8 things you can do in  New York throughout the month of August.

Powered by WorldNow
Didn't find what you were looking for?
All content © Copyright 2000 - 2014 Fox Television Stations, Inc. and Worldnow. All Rights Reserved.
Privacy Policy | Terms of Service | Ad Choices