Fundraiser golf outing for Trinity Lynn - New York News

Fundraiser golf outing for Trinity Lynn

Posted: Updated:

Trinity Lynn has a rare disease called S.O.D. (septo optic dysplasia).

A golf outing to help raise money for her treatment will take place on Friday, August 30th at the Brentwood Golf Course in White Lake.

The course is located at 2450 Havenwood Drive in White Lake. 

WEB: http://www.brentwoodgc.com/index.html

The cost is $375 per foresome, or $100 per person.

There's a lunch after golf with a silent auction.

Contact Mike Johnson 248-330-3855 or taral223@yahoo.com

FROM THE NATIONAL INSTITUTE OF HEALTH: http://ghr.nlm.nih.gov/condition/septo-optic-dysplasia

Septo-optic dysplasia is a disorder of early brain development. Although its signs and symptoms vary, this condition is traditionally defined by three characteristic features: underdevelopment (hypoplasia) of the optic nerve, abnormal formation of structures along the midline of the brain, and pituitary hypoplasia.

The first major feature, optic nerve hypoplasia, is the underdevelopment of the optic nerves, which carry visual information from the eyes to the brain. In affected individuals, the optic nerves are abnormally small and make fewer connections than usual between the eyes and the brain. As a result, people with optic nerve hypoplasia have impaired vision in one or both eyes. Optic nerve hypoplasia can also be associated with unusual side-to-side eye movements (nystagmus) and other eye abnormalities.

The second characteristic feature of septo-optic dysplasia is the abnormal development of structures separating the right and left halves of the brain. These structures include the corpus callosum, which is a band of tissue that connects the two halves of the brain, and the septum pellucidum, which separates the fluid-filled spaces called ventricles in the brain. In the early stages of brain development, these structures may form abnormally or fail to develop at all. Depending on which structures are affected, abnormal brain development can lead to intellectual disability and other neurological problems.

The third major feature of this disorder is pituitary hypoplasia. The pituitary is a gland at the base of the brain that produces several hormones. These hormones help control growth, reproduction, and other critical body functions. Underdevelopment of the pituitary can lead to a shortage (deficiency) of many essential hormones. Most commonly, pituitary hypoplasia causes growth hormone deficiency, which results in slow growth and unusually short stature. Severe cases cause panhypopituitarism, a condition in which the pituitary produces no hormones. Panhypopituitarism is associated with slow growth, low blood sugar (hypoglycemia), genital abnormalities, and problems with sexual development.

The signs and symptoms of septo-optic dysplasia can vary significantly. Some researchers suggest that septo-optic dysplasia should actually be considered a group of related conditions rather than a single disorder. About one-third of people diagnosed with septo-optic dysplasia have all three major features; most affected individuals have two of the major features. In rare cases, septo-optic dysplasia is associated with additional signs and symptoms, including recurrent seizures (epilepsy), delayed development, and abnormal movements.

  • Local NewsLocal NewsMore>>

  • Times Square, 1 WTC go gold for childhood cancer awareness

    Times Square, 1 WTC go gold for childhood cancer awareness

    Tuesday, September 2 2014 10:20 PM EDT2014-09-03 02:20:23 GMT
    Things are looking up for cute little Cami King. Not only is her cancer in remission, she also just got to meet Mickey, Minnie and Elmo in Times Square. But, if you can believe it, there's something else this 4-year-old is even more excited about: Times Square is going gold. The chairman of the Times Square Advertising Coalition announced the crossroads of the world is going to light up in gold to raise awareness for pediatric cancer research.
    Things are looking up for cute little Cami King. Not only is her cancer in remission, she also just got to meet Mickey, Minnie and Elmo in Times Square. But, if you can believe it, there's something else this 4-year-old is even more excited about: Times Square is going gold. The chairman of the Times Square Advertising Coalition announced the crossroads of the world is going to light up in gold to raise awareness for pediatric cancer research.
  • Lawyer says family of girl with Uzi is devastated

    Lawyer says family of girl with Uzi is devastated

    Tuesday, September 2 2014 10:00 PM EDT2014-09-03 02:00:24 GMT
    An attorney for the parents of a 9-year-old girl who accidentally killed an Arizona shooting range instructor with an Uzi say the family is devastated by the tragedy that occurred on a brief excursion during a...
    An attorney for the parents of a 9-year-old girl who accidentally killed an Arizona shooting range instructor with an Uzi say the family is devastated by the tragedy that occurred on a brief excursion during a vacation.
  • Deadly crash in Lincoln Tunnel

    Deadly crash in Lincoln Tunnel

    Tuesday, September 2 2014 8:15 PM EDT2014-09-03 00:15:54 GMT

    Officials say a New Jersey man has died from injuries he suffered in a chain-reaction crash inside one of the tubes of the Lincoln Tunnel.  Port Authority of New York and New Jersey police spokesman Joe Pentangelo says the 49-year-old Summit resident was among three people hurt in the accident.


    Officials say a New Jersey man has died from injuries he suffered in a chain-reaction crash inside one of the tubes of the Lincoln Tunnel.  Port Authority of New York and New Jersey police spokesman Joe Pentangelo says the 49-year-old Summit resident was among three people hurt in the accident.



Powered by WorldNow
Didn't find what you were looking for?
All content © Copyright 2000 - 2014 Fox Television Stations, Inc. and Worldnow. All Rights Reserved.
Privacy Policy | New Terms of Service What's new | Ad Choices