Teen With Rare Disease Gets Own 'Dream' Room - New York News

Teen With Rare Disease Gets Own 'Dream' Room

Posted: Updated:
Julian Julian

A teen, battling a rare disease, just got a chance to have something he's never had before, his own room. With the help of a few good Samaritans, they're making that dream come true.

The look on their faces say it all. The Sweet Dreams Foundation created a stunning dream room for Julian, a teen with a deadly genetic disease called X-linked adrenoleukodystrophy.

"This morning I came in bright an early before everyone else got here and brought him in the room, sat him down on the carpet and let him just feel everything that was going on in here," says Jenn Richardson, the Sweet Dreams Foundation Founder.

Murals pop from the wall, there's a gate to heaven design that Julian can feel. And the clouds on his ceiling light up.

"You can load a different video and you can change the hue and the color," says a designer as he shows us the control tablet.

The designers say Julian's room was an easy piece to do because he knew exactly what he wanted.

"His dream was heaven and he also loves animals and stuff," says Amy Bagshaw, the muralist.

Many people poured time and money to make Julian's dream room vision a reality. Some of them have never even taken time to visualize their own paradise. Jenn, lives with mom and dad.

"It's actually been a great thing, because realizing how important it is not having your own space," Jenn quips. "But so grateful my parents have let me move in so I can focus on Sweet Dreams."

It'll be a while before Jenn sees her own dream room, and now, there's a chance Julian will never see his. He lost his eyesight just last night, hours before he was supposed to see his new safe haven.

Julian's room came courtesy of the Sweet Dreams Foundation. The California-based charity has done this same thing for several other children diagnosed with life-threatening illnesses.

  • Local NewsLocal NewsMore>>

  • Runners of 3,100-mile race in Queens seek spiritual experience

    Runners of 3,100-mile race in Queens seek spiritual experience

    Thursday, July 31 2014 7:26 PM EDT2014-07-31 23:26:44 GMT
    Since mid-June, 14 runners have been on a mission that is spiritual at its core. They are running the Self-Transcendence 3,100 Mile Race in Jamaica, Queens. Spiritual leader and former Queens resident Sri Chimnoy, who died in 2007, created the race, which lasts 52 days.
    Since mid-June, 14 runners have been on a mission that is spiritual at its core. They are running the Self-Transcendence 3,100 Mile Race in Jamaica, Queens. Spiritual leader and former Queens resident Sri Chimnoy, who died in 2007, created the race, which lasts 52 days.
  • New York's smallest piece of private land

    New York's smallest piece of private land

    Thursday, July 31 2014 7:13 PM EDT2014-07-31 23:13:43 GMT
    The Hess triangle is a tiny piece of private property in Greenwich Village. Manhattan historian Joyce Gold explained the origins of the property: After World War I, New York City seized a beautiful residence and tore it down so it could extend Seventh Avenue and the west side subway below it. The city left the building's owner only a tiny scrap of property so small it requested he donate the triangle to make way for a sidewalk. The man refused, took the city to court and won.
    The Hess triangle is a tiny piece of private property in Greenwich Village. Manhattan historian Joyce Gold explained the origins of the property: After World War I, New York City seized a beautiful residence and tore it down so it could extend Seventh Avenue and the west side subway below it. The city left the building's owner only a tiny scrap of property so small it requested he donate the triangle to make way for a sidewalk. The man refused, took the city to court and won.
  • Road-trip vacations that don't break the bank

    Road-trip vacations that don't break the bank

    Thursday, July 31 2014 5:37 PM EDT2014-07-31 21:37:29 GMT
    Last-minute vacations don't need to be a headache or ridiculously expensive, especially if you make it a road trip. Even if you don't have a car, renting one can be an affordable option.Lauren Lyons Cole, a personal finance contributor to TheStreet.com, has some suggestions.
    Last-minute vacations don't need to be a headache or ridiculously expensive, especially if you make it a road trip. Even if you don't have a car, renting one can be an affordable option.Lauren Lyons Cole, a personal finance contributor to TheStreet.com, has some suggestions.
Powered by WorldNow
Didn't find what you were looking for?
All content © Copyright 2000 - 2014 Fox Television Stations, Inc. and Worldnow. All Rights Reserved.
Privacy Policy | Terms of Service | Ad Choices