Sarah's Mom Has Strong Words For Government - New York News

Sarah's Mom Has Strong Words For Government

Posted: Updated:
PHILADELPHIA -

We have an update to the heartbreaking story of a little girl in desperate need of a lung transplant.

We have been following this story for you for the past week, showing a mother's race against time and red tape that has reached all the way to Washington, D.C.

Tonight, we have strong words from Sarah's mom to the government.

"She's a mother. She's a grandmother. How can she say it's OK for my child to die?" asked a tearful Janet Murnaghan.

She's talking about U.S. Health and Human Services Secretary Kathleen Sebelius, who two days ago instructed the government-contracted donor organization to review its policy that prevents Sarah Murnaghan from being eligible for an adult lung transplant.

"This case really, you know, kind of touches your heart strings," said Associate Secretary of Health and Human Services George Sheldon. "And so I think it's one of those that's gut-wrenching for the Department of Health and Human Services."

But Sarah's mom says the government is moving way too slowly. She believes Sebelius can step in and do more than order a review. She wants action now, before Sarah's bout with cystic fibrosis claims her life.

"She is legally in a position to save Sarah's life, and she's choosing not to," Janet Murnaghan said. "She is stating that there needs to be change and something is wrong with the system but that she's not going to save Sarah."

Here is the problem: At Sarah's age and size, her body may accept an adult-sized lung, although doctors say the procedure may be more difficult.

Donor regulations say, however, that if you're under 12 you must wait for a child donor, not an adult.

Sarah is 10.

"I have to focus my fight for Sarah because Sarah doesn't time," Janet Murnaghan said.

With the clock ticking down, the desperate mom is asking the public to give the gift of life – and designate it specifically to Sarah.

"That is the only thing that can go above this law, if a family who's giving the gift of life says, 'But for her lungs we want them to go to Sarah,'" the tearful mother said.

  • Sarah's FightMore>>

  • Sarah Murnaghan Leaves CHOP, Arrives Home!

    Sarah Murnaghan Leaves CHOP, Arrives Home!

    Wednesday, December 18 2013 12:12 PM EST2013-12-18 17:12:02 GMT
    After several months in the hospital and agonizing surgeries, 11-year-old Sarah Murnaghan is finally going home today.
    After several months in the hospital and agonizing surgeries, 11-year-old Sarah Murnaghan is finally home!
  • Sarah Murnaghan Breaths On Her Own

    Sarah Murnaghan Breaths On Her Own

    Tuesday, September 17 2013 8:36 PM EDT2013-09-18 00:36:11 GMT
    In the video, Sarah's aunt asks Sarah, "Are you off your machines?" To which Sarah eventually responds, "I feel fine."
    In the video, Sarah's aunt asks Sarah, "Are you off your machines?" To which Sarah eventually responds, "I feel fine."
  • Sarah Murnaghan Recovering At Home

    Sarah Murnaghan Recovering At Home

    Tuesday, September 17 2013 8:26 PM EDT2013-09-18 00:26:48 GMT
    Sarah's mom says she's looking forward to playing with her friends, singing and playing soccer. She'll basically enjoy the normal life of an 11-year-old.
    Sarah's mom says she's looking forward to playing with her friends, singing and playing soccer. She'll basically enjoy the normal life of an 11-year-old.
  • Local NewsMore>>

  • Only On Fox: Arsonist On The Loose In South Jersey Town

    Only On Fox: Arsonist On The Loose In South Jersey Town

    Wednesday, April 16 2014 4:45 PM EDT2014-04-16 20:45:07 GMT
    It started with a brush fire, then another fire at the rear of this home on Monroe Street and finally a blaze that swept through this vacant home up the block, just a few feet away from where Emma Sethman
    It started with a brush fire, then another fire at the rear of this home on Monroe Street and finally a blaze that swept through this vacant home up the block, just a few feet away from where Emma Sethman
  • Man Killed in Monroe Township Skydiving Accident

    Man Killed in Monroe Township Skydiving Accident

    Man Killed in Monroe Township Skydiving Accident

    Monday, April 21 2014 12:29 AM EDT2014-04-21 04:29:13 GMT
    A person was injuredafter askydiving accident in Gloucester, Washington Township on Sunday afternoon.Police say the parachute did not open. The person landed on Tuckahoe Road right across from the United Artists movie theatre, which is about a half mile from Cross Keys Airport.Police are currently on the scene still investigating.Stay with Fox 29 for any updates on this story.
    A person was injuredafter askydiving accident in Gloucester, Washington Township on Sunday afternoon.Police say the parachute did not open. The person landed on Tuckahoe Road right across from the United Artists movie theatre, which is about a half mile from Cross Keys Airport.Police are currently on the scene still investigating.Stay with Fox 29 for any updates on this story.
  • Campus Police: Sexual Assault Reported At West Chester University

    Campus Police: Sexual Assault Reported At West Chester University

    Campus Police: Sexual Assault Reported At West Chester University

    Monday, April 21 2014 12:24 AM EDT2014-04-21 04:24:21 GMT
    Students and parents are on edge after a sexual assault was reported to the University Department of Public Safety on Saturday, April 19th at 2:28 a.m.According to campus police, the assault occurred in a residence on campus. Police say the victim did not know the attacker."It's kind of scary because obviously it shouldn't be happening," student Kate Luff said. "There's security guards so I mean they had to have gotten signed in or lived in the building."Other studentsare just as shocked."Tha...
    Students and parents are on edge after a sexual assault was reported to the University Department of Public Safety on Saturday, April 19th at 2:28 a.m.According to campus police, the assault occurred in a residence on campus. Police say the victim did not know the attacker."It's kind of scary because obviously it shouldn't be happening," student Kate Luff said. "There's security guards so I mean they had to have gotten signed in or lived in the building."Other studentsare just as shocked."Tha...
Powered by WorldNow
Didn't find what you were looking for?
All content © Copyright 2000 - 2014 Fox Television Stations, Inc. and Worldnow. All Rights Reserved.
Privacy Policy | Terms of Service | Ad Choices