Sarah's Family Reacts To Call For Donor Policy Change - New York News

Sarah's Family Responds To Organ Transplant Group's Policy Review

Posted: Updated:

Sarah Murnaghan celebrated her 100-day brave party Friday at Children's Hospital of Philadelphia. Her aunt says the 10-year-old's battle with cystic fibrosis has been one heck of a fight. 

"She lost a lot of her  hearing from all the drugs. She has two fractures  in her back from all the coughing," explained Sharon Ruddock.

As if that's not bad enough, the Newtown Square, girl will die unless she gets a lung transplant soon.

"We say you fight and you'll get lungs. You keep fighting and hanging in we'll get you lungs."

Sarah is two years too young to get on the waiting list for an adult lung transplant. Instead she's on a pediatric list, forced to wait for a rare child donor.

"This case really tugs at your heartstrings," said George Sheldon, the Assistant Secretary of US Health & Human Services.

HHS along with UNOS, "The United Network of Organ Sharing," have the power to help save Sarah's life.

HHS Secretary Kathleen Sebelius sent UNOS a letter Friday, urging them to improve their policy so more children can receive organs.

But it didn't require the federally contracted organ transplant system to make an exception for Sarah.

"The rules are immoral. The kids are at back of line," exclaimed Sarah's aunt. "We believe kids should be in front. Not in front but in line equitably with adults."

Per Secretary Sebelius' request, UNOS has agreed to review its policies. But its decision could be months, maybe even years too late for Sarah.

Spokeswoman Anne Paschke says: "It's not untypical to take a couple of years for a policy to be developed, go out for public comment and be voted on by the board."

For the 10-year-old girl who dreams of being a star, her best shot at life may be a direct donation, someone saying their loved one's lungs have to go to Sarah.

  • Sarah's FightMore>>

  • Sarah Murnaghan Leaves CHOP, Arrives Home!

    Sarah Murnaghan Leaves CHOP, Arrives Home!

    Wednesday, December 18 2013 12:12 PM EST2013-12-18 17:12:02 GMT
    After several months in the hospital and agonizing surgeries, 11-year-old Sarah Murnaghan is finally going home today.
    After several months in the hospital and agonizing surgeries, 11-year-old Sarah Murnaghan is finally home!
  • Sarah Murnaghan Breaths On Her Own

    Sarah Murnaghan Breaths On Her Own

    Tuesday, September 17 2013 8:36 PM EDT2013-09-18 00:36:11 GMT
    In the video, Sarah's aunt asks Sarah, "Are you off your machines?" To which Sarah eventually responds, "I feel fine."
    In the video, Sarah's aunt asks Sarah, "Are you off your machines?" To which Sarah eventually responds, "I feel fine."
  • Sarah Murnaghan Recovering At Home

    Sarah Murnaghan Recovering At Home

    Tuesday, September 17 2013 8:26 PM EDT2013-09-18 00:26:48 GMT
    Sarah's mom says she's looking forward to playing with her friends, singing and playing soccer. She'll basically enjoy the normal life of an 11-year-old.
    Sarah's mom says she's looking forward to playing with her friends, singing and playing soccer. She'll basically enjoy the normal life of an 11-year-old.
  • Local NewsMore>>

  • Police: Man Tried To Board Plane At Newark With Assault Rifle

    Police: Man Tried To Board Plane At Newark With Assault Rifle

    Police say an Indiana man tried to board a flight for Chicago with an assault weapon at New Jersey's Newark airport.
    Police say an Indiana man tried to board a flight for Chicago with an assault weapon at New Jersey's Newark airport.
  • Evesham Police: Suspicious Package Found In Municipal Complex

    Evesham Police: Suspicious Package Found In Municipal Complex

    Evesham Police: Suspicious Package Found In Municipal Complex

    Thursday, April 24 2014 11:13 AM EDT2014-04-24 15:13:28 GMT
    Evesham Police Department are conducting an investigation into a suspicious package found inside the lobby of the Evesham Municipal Complex.Evesham Police Department are conducting an investigation into a suspicious package found inside the lobby of the Evesham Municipal Complex.
    Evesham Police are investigating a suspicious package found this morning by an officer that forced a shutdown of the Evesham Municipal Complex.
    Evesham Police are investigating a suspicious package found this morning by an officer that forced a shutdown of the Evesham Municipal Complex.
  • Ramsey: Deliveryman's Shooting By Police Looks Like 'Tragic Miscommunication'

    Ramsey: Deliveryman's Shooting By Police Looks Like 'Tragic Miscommunication'

    Thursday, April 24 2014 7:30 AM EDT2014-04-24 11:30:04 GMT
    Police say a man shot and wounded by plainclothes officers in Philadelphia is a pizza deliveryman who may have mistaken them for robbers.
    Police say a man shot and wounded by plainclothes officers in Philadelphia is a pizza deliveryman who may have mistaken them for robbers.
  • Local NewsLocal NewsMore>>

  • Brooklyn deli clerk set on fire

    Brooklyn deli clerk set on fire

    Thursday, April 24 2014 11:25 AM EDT2014-04-24 15:25:11 GMT
    A store clerk inside of a Brooklyn mini-mart was set ablaze when an enraged sicko threw a Molotov Cocktail into the store.  It happened just before 2 a.m. on Wednesday at the store on Fort Hamilton Parkway.The 34-year-old store clerk had his hair and coat catch fire in the attack.
    A store clerk inside of a Brooklyn mini-mart was set ablaze when an enraged sicko threw a Molotov Cocktail into the store.  It happened just before 2 a.m. on Wednesday at the store on Fort Hamilton Parkway.The 34-year-old store clerk had his hair and coat catch fire in the attack.
  • Conn. teen seeks OK for 22-year-old prom date

    Conn. teen seeks OK for 22-year-old prom date

    Thursday, April 24 2014 10:07 AM EDT2014-04-24 14:07:15 GMT
    A Connecticut teenager is appealing to her local Board of Education after school officials rejected her request to bring her 21-year-old boyfriend to her prom.
    A Connecticut teenager is appealing to her local Board of Education after school officials rejected her request to bring her 21-year-old boyfriend to her prom.
  • Free dental clinic to draw thousands in Hartford

    Free dental clinic to draw thousands in Hartford

    Thursday, April 24 2014 8:24 AM EDT2014-04-24 12:24:06 GMT
    More than 2,000 patients are expected to seek free dental work at an annual clinic in Connecticut.  The seventh annual Connecticut Mission of Mercy free dental clinic is scheduled for Friday and Saturday.
    More than 2,000 patients are expected to seek free dental work at an annual clinic in Connecticut.  The seventh annual Connecticut Mission of Mercy free dental clinic is scheduled for Friday and Saturday.
Powered by WorldNow
Didn't find what you were looking for?
All content © Copyright 2000 - 2014 Fox Television Stations, Inc. and Worldnow. All Rights Reserved.
Privacy Policy | Terms of Service | Ad Choices