Sarah's Family Reacts To Call For Donor Policy Change - New York News

Sarah's Family Responds To Organ Transplant Group's Policy Review

Posted: Updated:

Sarah Murnaghan celebrated her 100-day brave party Friday at Children's Hospital of Philadelphia. Her aunt says the 10-year-old's battle with cystic fibrosis has been one heck of a fight. 

"She lost a lot of her  hearing from all the drugs. She has two fractures  in her back from all the coughing," explained Sharon Ruddock.

As if that's not bad enough, the Newtown Square, girl will die unless she gets a lung transplant soon.

"We say you fight and you'll get lungs. You keep fighting and hanging in we'll get you lungs."

Sarah is two years too young to get on the waiting list for an adult lung transplant. Instead she's on a pediatric list, forced to wait for a rare child donor.

"This case really tugs at your heartstrings," said George Sheldon, the Assistant Secretary of US Health & Human Services.

HHS along with UNOS, "The United Network of Organ Sharing," have the power to help save Sarah's life.

HHS Secretary Kathleen Sebelius sent UNOS a letter Friday, urging them to improve their policy so more children can receive organs.

But it didn't require the federally contracted organ transplant system to make an exception for Sarah.

"The rules are immoral. The kids are at back of line," exclaimed Sarah's aunt. "We believe kids should be in front. Not in front but in line equitably with adults."

Per Secretary Sebelius' request, UNOS has agreed to review its policies. But its decision could be months, maybe even years too late for Sarah.

Spokeswoman Anne Paschke says: "It's not untypical to take a couple of years for a policy to be developed, go out for public comment and be voted on by the board."

For the 10-year-old girl who dreams of being a star, her best shot at life may be a direct donation, someone saying their loved one's lungs have to go to Sarah.

  • Sarah's FightMore>>

  • Sarah Murnaghan Leaves CHOP, Arrives Home!

    Sarah Murnaghan Leaves CHOP, Arrives Home!

    Wednesday, December 18 2013 12:12 PM EST2013-12-18 17:12:02 GMT
    After several months in the hospital and agonizing surgeries, 11-year-old Sarah Murnaghan is finally going home today.
    After several months in the hospital and agonizing surgeries, 11-year-old Sarah Murnaghan is finally home!
  • Sarah Murnaghan Breaths On Her Own

    Sarah Murnaghan Breaths On Her Own

    Tuesday, September 17 2013 8:36 PM EDT2013-09-18 00:36:11 GMT
    In the video, Sarah's aunt asks Sarah, "Are you off your machines?" To which Sarah eventually responds, "I feel fine."
    In the video, Sarah's aunt asks Sarah, "Are you off your machines?" To which Sarah eventually responds, "I feel fine."
  • Sarah Murnaghan Recovering At Home

    Sarah Murnaghan Recovering At Home

    Tuesday, September 17 2013 8:26 PM EDT2013-09-18 00:26:48 GMT
    Sarah's mom says she's looking forward to playing with her friends, singing and playing soccer. She'll basically enjoy the normal life of an 11-year-old.
    Sarah's mom says she's looking forward to playing with her friends, singing and playing soccer. She'll basically enjoy the normal life of an 11-year-old.
  • Local NewsLocal NewsMore>>

  • MTA, union reach deal for transit workers

    MTA, union reach deal for transit workers

    Thursday, April 17 2014 5:09 PM EDT2014-04-17 21:09:38 GMT
    Transit officials and the union representing about 34,000 city subway and bus workers reached a tentative contract deal that would include raises and new benefits but require higher health insurance payments, both sides and Gov. Andrew Cuomo said Thursday.
    Transit officials and the union representing about 34,000 city subway and bus workers reached a tentative contract deal that would include raises and new benefits but require higher health insurance payments, both sides and Gov. Andrew Cuomo said Thursday.
  • Dance raves for kids at NYC's hot clubs

    Dance raves for kids at NYC's hot clubs

    Thursday, April 17 2014 4:21 PM EDT2014-04-17 20:21:39 GMT
    A dance party for kids and tweens looks like a rave or perhaps a wild night at the club. But actually, many of the people at this party probably just learned how to tie their shoes. Twin brothers Tyler and Tristin recently had a FUZIPOP party in Manhattan to celebrate their 10th birthday. Never heard of a FUZIPOP party?
    A dance party for kids and tweens looks like a rave or perhaps a wild night at the club. But actually, many of the people at this party probably just learned how to tie their shoes. Twin brothers Tyler and Tristin recently had a FUZIPOP party in Manhattan to celebrate their 10th birthday. Never heard of a FUZIPOP party?
  • Ex-NBA player: Re-entry tougher than serving time

    Ex-NBA player: Re-entry tougher than serving time

    Thursday, April 17 2014 4:05 PM EDT2014-04-17 20:05:09 GMT
    Jayson WilliamsJayson Williams
    New Jersey Gov. Chris Christie and the federal prosecutor investigating political payback allegations involving the Republican's administration are both set to speak at a prisoner re-entry conference on Thursday.
    Former NBA player Jayson Williams says trying to re-enter society after serving time for shooting a limousine driver was more difficult than being in prison.
Powered by WorldNow
Didn't find what you were looking for?
All content © Copyright 2000 - 2014 Fox Television Stations, Inc. and Worldnow. All Rights Reserved.
Privacy Policy | Terms of Service | Ad Choices