Rare disorder causes child's insatiable appetite - New York News

Rare disorder causes child's insatiable appetite

Updated:
CHANDLER, Ariz. -

It's a very rare disease. Only about a hundred children in the valley have it. It's called Prader-Willi Syndrome. But for the kids that do have it, life can be very difficult.

We have one family's story.

It looks like playtime for 7-month-old Ben Pulcrpek. For his parents Adrian and Kristy, this is a physical therapy session for their son.

Baby Ben has a rare genetic disorder called Prader-Willi.

"I never heard of it before, we thought we were having a perfectly healthy child," says Kristy.

She did a lot of research. Her oldest son started crawling at 7 months. But Ben doesn't have enough muscle mass yet because of the disorder.

His parents Kristy and Adrian are helping him with that problem.

Little Ben gets a growth hormone shot every night to help him grow strong.

He will need the help. Prader-Willi can cause physical, mental, and behavioral problems. And it doesn't get better as they get older.

"The main symptom as an adult is they have an insatiable hunger. They always feel hungry. They can consume 10,000 calories and still feel hungry," says Kristy.

There is no cure for Prader-Willi yet, but Kristy is hoping with time and money there will be a cure soon.

There is a walk Saturday morning at 8 a.m. in Chandler at Desert Breeze Park.

They are hoping to raise money to find a cure.

Online: https://onesmallstep.fpwr.org/dw/walking/location/622


  • Local NewsLocal NewsMore>>

  • Conn. teen seeks OK for 22-year-old prom date

    Conn. teen seeks OK for 22-year-old prom date

    Thursday, April 24 2014 10:07 AM EDT2014-04-24 14:07:15 GMT
    A Connecticut teenager is appealing to her local Board of Education after school officials rejected her request to bring her 21-year-old boyfriend to her prom.
    A Connecticut teenager is appealing to her local Board of Education after school officials rejected her request to bring her 21-year-old boyfriend to her prom.
  • Free dental clinic to draw thousands in Hartford

    Free dental clinic to draw thousands in Hartford

    Thursday, April 24 2014 8:24 AM EDT2014-04-24 12:24:06 GMT
    More than 2,000 patients are expected to seek free dental work at an annual clinic in Connecticut.  The seventh annual Connecticut Mission of Mercy free dental clinic is scheduled for Friday and Saturday.
    More than 2,000 patients are expected to seek free dental work at an annual clinic in Connecticut.  The seventh annual Connecticut Mission of Mercy free dental clinic is scheduled for Friday and Saturday.
  • Fire at Carlstadt Post Office

    Fire at Carlstadt Post Office

    Thursday, April 24 2014 7:50 AM EDT2014-04-24 11:50:47 GMT
    An overnight fire caused significant damage to a Carlstadt, N.J. post office.  It happened around 1:30 a.m. on Thursday at 331 1st Street.
    An overnight fire caused significant damage to a Carlstadt, N.J. post office.  It happened around 1:30 a.m. on Thursday at 331 1st Street.
Powered by WorldNow
Didn't find what you were looking for?
All content © Copyright 2000 - 2014 Fox Television Stations, Inc. and Worldnow. All Rights Reserved.
Privacy Policy | Terms of Service | Ad Choices