Fundraiser for 2 Chester Co Kids With Rare Disease
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Updated:
A Chester county community comes together, to
help two children battling a rare disease.
Eli and Ella Vivian suffer from Metachromatic
Leukodystrophy, a disease that attacks the brain, nerves, and muscles.
Their parents held a fundraiser Saturday
night in Phoenixville, PA. They're trying to raise enough money to fly their
family out to Milan, Italy, where doctors are conducting a gene therapy study.
Only a certain number of children are accepted into the study, so Becky and
Steve Vivian hope their kids make the cut.
Family and friends got together and formed
"Eli and Ella's Prayer Warriors". They raise faith, awareness, and money for
the children's treatment.
If you want to help raise money for Eli and
Ella's Prayer Warriors, you can find information on their facebook page.
Thursday, June 20 2013 5:46 AM EDT2013-06-20 09:46:20 GMT
Another spectacular weather day with mostly sunny skies and low humidity. Temperatures top off in the lower 80s. About ten degrees cooler at the shore, with a sea breeze.
The stickies will come back just in time for summer.
Wednesday, June 19 2013 10:14 PM EDT2013-06-20 02:14:32 GMT
At approximately 2:45pm Wednesday afternoon, a bank robbery occurred at the National Penn Bank on E. High Street in Pottstown, PA. Police have captured three of the fours suspects so far.
At approximately 2:45pm Wednesday afternoon, a bank robbery occurred at the National Penn Bank on E. High Street in Pottstown, PA. Police have captured three of the fours suspects so far.
Wednesday, June 19 2013 8:19 PM EDT2013-06-20 00:19:58 GMT
Breaking news in North Philadelphia on the 2300 block of North Tenth Street, where three people, including a pregnant woman, were shot. This happened just before four this afternoon.
Breaking news in North Philadelphia on the 2300 block of North Tenth Street, where three people, including a pregnant woman, were shot. This happened just before four this afternoon.
Wednesday, June 19 2013 6:11 PM EDT2013-06-19 22:11:57 GMT
If you hated going to traffic court in Philadelphia, you won't have to anymore! Today, Governor Tom Corbett signed a bill abolishing traffic court,effective immediately.
If you hated going to traffic court in Philadelphia, you won't have to anymore! Today, Governor Tom Corbett signed a bill abolishing traffic court,effective immediately.
Thursday, June 20 2013 6:10 AM EDT2013-06-20 10:10:08 GMT
The driver of the vehicle that left several people injured and a trail of destruction in the area of 2nd Avenue and East 4th Street in the East Village has been arrested.
The driver of the vehicle that left several people injured and a trail of destruction in the area of 2nd Avenue and East 4th Street in the East Village has been arrested.
Wednesday, June 19 2013 10:55 PM EDT2013-06-20 02:55:03 GMT
The actor James Gandolfini, best known for his award-winning portrayal of New Jersey mobster Tony Soprano in the HBO series "The Sopranos," has died in Italy. He was 51.
The actor James Gandolfini, best known for his award-winning portrayal of New Jersey mobster Tony Soprano in the HBO series "The Sopranos," has died in Italy. He was 51.
Wednesday, June 19 2013 10:53 PM EDT2013-06-20 02:53:25 GMT
Joe Torre's daughter caught a 1-year-old boy who fell from a fire escape outside a second-floor apartment in the Bay Ridge section of Brooklyn Wednesday morning.
Joe Torre's daughter caught a 1-year-old boy who fell from a fire escape outside a second-floor apartment in the Bay Ridge section of Brooklyn Wednesday morning.
New York state and Eastman Kodak Co. have reached a deal that will keep some of the troubled company's operations in Rochester and provide $49 million for environmental cleanup at the once bustling Eastman...
New York state and Eastman Kodak Co. have reached a deal that will keep some of the troubled company's operations in Rochester and provide $49 million for environmental cleanup at the once bustling Eastman Business Park.
Wednesday, June 19 2013 6:51 PM EDT2013-06-19 22:51:22 GMT
Franklin Reyes, 17, was in court Wednesday. He is charged with the death of 4-year-old Ariel Russo.
Franklin Reyes, 17, was in court Wednesday. He is charged with the death of 4-year-old Ariel Russo. He is accused of driving without a license, then fleeing police, jumping a curb, and hitting Ariel and her grandmother as they were walking to school.
Wednesday, June 19 2013 6:13 PM EDT2013-06-19 22:13:15 GMT
More than 70 percent of New Jersey residents have seen or heard the state's "Stronger than the Storm" advertising campaign, according to a new Rutgers-Eagleton poll.
More than 70 percent of New Jersey residents have seen or heard the state's "Stronger than the Storm" advertising campaign, according to a new Rutgers-Eagleton poll.
Wednesday, June 19 2013 4:30 PM EDT2013-06-19 20:30:42 GMT
The FBI has found possible human remains in a dig at the New York City house once occupied by a famous gangster. An FBI spokesman confirmed Wednesday that agents found material that they want to test as part of an investigation.
The FBI has found possible human remains in a dig at the New York City house once occupied by a famous gangster. An FBI spokesman confirmed Wednesday that agents found material that they want to test as part of an investigation.
